Fibromyalgia

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  • Overlapping Conditions

    MedWorm Query: fibromyalgia
    10 May 2012 | 10:00 pm
    Learn about the host of comorbidity in fibromyalgia and chronic fatigue syndrome, including myofascial pain syndrome, migraine, multiple chemical sensitivity, Gulf War syndrome, post-traumatic stress disorder, sleep disorders and more. See how these conditions can interact with fibromyalgia and chronic fatigue syndrome. (Source: About.com Eating Disorders)

  • Fibromyalgia & Elimination Diet Success Story

    About.com Fibromyalgia & Chronic Fatigue Syndrome
    16 May 2012 | 1:00 am
    What you eat - or don't - can have a big impact on your fibromyalgia or chronic fatigue syndrome symptoms. There's no single diet that works for all of us - our symptoms and dysfunctions are too varied for that - but some things are more likely to help us than others. Sometimes simple dietary tweaks work, while other times it takes major changes. We just have to figure out what works for each of us. A recent Readers Respond comment demonstrates just how effective dietary changes can be: "Per recommendations from this article, I eliminated sugar, alcohol chocolate and cut back on caffeine 2…

  • The Fibromyalgia Hug

    The Fibromyalgia Experiment
    Sarakastic
    12 May 2012 | 8:24 am
    I was kidding with someone who had fibromyalgia after I had given hugs to everyone else in the room. I said “this is how you hug with fibromyalgia” and did an air hug where our skin wasn’t even touching. The burning sensation on our skin can make it pretty difficult to even find solace in a hug. Do you still hug?

  • The Value of Valium

    fibromyalgia « WordPress.com Tag Feed
    Purple Law Lady
    12 May 2012 | 5:55 pm
    Last week, I wrote a post about some meds I was giving a try. They didn’t work for me but I did get some fabulous advice from some of you, especially themirrenlee. She talked about Valium at bedtime, which I was able to talk my doctor into trying – hopefully, it will allow my muscles to relax enough to appreciate the sleep that I get. According to a small study, funded by TONIX Pharmaceuticals, low doses of muscle relaxants (currently prescribes ‘off-label’), taken at bedtime, help people with FM sleep better and feel less pain. Seth Lederman, MD and president of TONIX…

  • Believe it is Possible

    Fibromyalgia Haven
    FibroHaven
    8 May 2012 | 1:50 pm
    What happens when your belief in Possibility and your daily Actions are in alignment? Take a look for yourself. Simply beautiful.  
 
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    About.com Fibromyalgia & Chronic Fatigue Syndrome

  • Fibromyalgia & Elimination Diet Success Story

    16 May 2012 | 1:00 am
    What you eat - or don't - can have a big impact on your fibromyalgia or chronic fatigue syndrome symptoms. There's no single diet that works for all of us - our symptoms and dysfunctions are too varied for that - but some things are more likely to help us than others. Sometimes simple dietary tweaks work, while other times it takes major changes. We just have to figure out what works for each of us. A recent Readers Respond comment demonstrates just how effective dietary changes can be: "Per recommendations from this article, I eliminated sugar, alcohol chocolate and cut back on caffeine 2…

  • Less Connectivity & Pain Dysregulation in Fibromyalgia

    14 May 2012 | 1:00 am
    Research Brief New research demonstrated that the brains of people with fibromyalgia have physiological dysregulation in the pain inhibition network. Pain inhibition is a process by which repeated painful stimuli, in a health person, hurts progressively less. Previous studies have shown that this network doesn't work properly in fibromyalgia, meaning that repeated stimuli hurts progressively more in people with the illness. The new study used functional MRI on people with fibromyalgia and healthy controls while they experienced pain. The brains of participants with fibromyalgia showed less…

  • Phone App Tracking of Fibromyalgia, Other Pain

    11 May 2012 | 1:00 am
    The creator of a smart-phone app for tracking chronic pain has announced that fibromyalgia is among the top conditions for which people use the app. Damon Lynn lives with chronic pain himself. He says a survey of users of his My Pain Diary: Chronic Pain Management for iPhone shows that it's used for: Back Pain: 42% Migraines/Headaches: 40% Fibromyalgia: 38% That adds up to more than 100%, which is because 59% of users are tracking more than one chronic condition, and 15% of users are tracking five or more. A lot of health-focused smart-phone apps are available. As the owner of what must be a…

  • May 12: Awareness Day for Fibromyalgia & Chronic Fatigue Syndrome

    9 May 2012 | 1:00 am
    Awareness is a powerful thing. It's done wonders for some illnesses, such as muscular dystrophy, breast cancer and Parkinson's disease. Awareness means public acceptance and money for research - both of which are desperately needed by those of us with fibromyalgia and chronic fatigue syndrome. May 12 is our Awareness Day and events are planned for around the country. It's tough for those of us with these illnesses to get out there and take part in these activities, even if they are happening where we live. Some of us are lucky if we have enough energy to take a shower, get dressed and eat on…

  • A Teenager's Perspective on Chronic Fatigue Syndrome

    7 May 2012 | 1:00 am
    Those of us with fibromyalgia and chronic fatigue syndrome can learn a lot from each other, and that's true regardless of age. A recent Readers Respond from a teenager is a great example of that. She's having a rough time, but she's also finding ways to deal with it. Here's what she had to say: "Well, I'm only 13, so you will think i don't know what its like, but honestly, I do. My friends to be honest aren't very nice about me having chronic fatigue. I take all my time trying to explain it to them and all they will say is 'oh' which really upsets me. I can't do the things I used to, and they…
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    The Fibromyalgia Experiment

  • The Fibromyalgia Hug

    Sarakastic
    12 May 2012 | 8:24 am
    I was kidding with someone who had fibromyalgia after I had given hugs to everyone else in the room. I said “this is how you hug with fibromyalgia” and did an air hug where our skin wasn’t even touching. The burning sensation on our skin can make it pretty difficult to even find solace in a hug. Do you still hug?

  • Fibromyalgia and Skin Problems

    Sarakastic
    11 May 2012 | 8:27 am
    I was looking up skin problems that can also occur with fibromyalgia and was quite relieved that there is one that I don’t have. I usually focus on more basic factors with this disease, like how many people can work? What’s their mobility like and do they need walking devices or have they had surgery where they needed a knee scooter rental? Some of the symptoms are just plain weird though. I read forums where different people were complaining of their skin itching from the inside. They had tried all sorts of allergy tests and treatments to no avail. I wondered if this was similar…

  • Take Breaks When You Can

    Sarakastic
    7 May 2012 | 1:57 am
    This advice works well for fibromyalgia and also for working from home. There are days when I feel good and I try to get as much done as possible. There are also days when there’s plenty of work and I know just what to do. Sometimes I work far over what I would at a traditional job. With fibromyalgia this can be quite dangerous. I wish I had tv mounts and a better TV for days when I was sick. However, that means that I also need to relax when there’s time. This means when I’m sick I’ve already prepared in advance for it. I also have learned that when the rest of the…

  • What Would Your Impression Be?

    Sarakastic
    7 May 2012 | 1:55 am
    I was wondering what would your impression be of fibromyalgia if you didn’t have fibromyalgia. I’m trying to think of people that I would’ve met in everyday life if I hadn’t been a part of the fibromyalgia community. It’s helped me to see better why many people have misconceptions about the disease. It’s real to me and a big deal to me because it is my life. It’s hard to imagine looking at it through someone else’s eyes.

  • That’s the Way It Goes

    Sarakastic
    7 May 2012 | 1:55 am
    This time when the internet started freaking out about the recent Google updates I had to smile a little bit. Sure, it was disappointing for me too. However, I’ve found out through the years that it’s always something. It’s important to ensure that I don’t count my money before it comes in. Some years I think I’ll be a home owner or at least look at park homes but I never quite get there. I know I will someday though. I also have learned that it’s important not to give up when these things happen. Every year it’s the same thing. People say that this…
 
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    fibromyalgia « WordPress.com Tag Feed

  • The Value of Valium

    Purple Law Lady
    12 May 2012 | 5:55 pm
    Last week, I wrote a post about some meds I was giving a try. They didn’t work for me but I did get some fabulous advice from some of you, especially themirrenlee. She talked about Valium at bedtime, which I was able to talk my doctor into trying – hopefully, it will allow my muscles to relax enough to appreciate the sleep that I get. According to a small study, funded by TONIX Pharmaceuticals, low doses of muscle relaxants (currently prescribes ‘off-label’), taken at bedtime, help people with FM sleep better and feel less pain. Seth Lederman, MD and president of TONIX…

  • Six Word Saturday May 12, 2012

    Barefoot Baroness
    12 May 2012 | 5:48 pm
    Today I dedicate my Six Word Saturday to a cause that touches my world deeply. There is a lot to learn, to be learned, and answers  still to be sought out. The best thing we as laypersons can do to help is just keep the conversation going. Keeping the awareness alive and on the fore front of research monies being spent a cure will one day be a reality. Right now we don’t even have a definitive diagnostic test. For more information and so you too can speak about this disease with some authority please go to: http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001463/ Thank you so much for…

  • 12 May 2012 | 5:10 pm

    powershealthandwellness
    12 May 2012 | 5:10 pm
    If I could give my mom the world Or anything she wanted, I’d give her my own heart and soul And leave my own heart haunted. I’d take upon myself her life With all its strife and pain, And let her ease into some space Where she could live again. The pain for me would not be pain, At least not for a while; For I’d be doing it for her, And I would see her smile. I wish that I could take her heart And cleanse it with my tears, And make her sorrow go away, And answer all her fears. I wish, I wish, but then I can’t, As I watch helplessly, And take her in my arms and say I…

  • Hello world!

    rainyjane68
    12 May 2012 | 4:10 pm
    Hello,  my name is Zofia.  I have fibromyalgia. This blog is dedicated to spreading awareness and making this invisible disease, VISIBLE. Purple is the color of our support ribbon. We do share the color with many other causes as well. Although I suffer from fibro, I will also dedicate this page to other “invisible diseases” as well. I am new to “blogging” so please bear with me on my new journey. I hope you like what you see. Thanks. <3 Zofia

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    advancedmedaz
    12 May 2012 | 3:52 pm
    SAVE $150.00 TODAY! Contact us prior to May 31st, 2012 and get an additional FREE Health Conditions Insight(SM) genetic test ($150 value)! The Arizona Center for Advanced Medicine has teamed up with Pathway Genomics to offer this amazing and comprehensive approach to personal diet and lifestyle change. Benefits of Pathway Fit® provided by Arizona Center for Advanced Medicine… A comprehensive approach to personal diet and lifestyle change. Understand how your genes influence your body’s response to diet, nutrition and exercise. An excellent tool to help you focus on the genetically…
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    Fibromyalgia Haven

  • Believe it is Possible

    FibroHaven
    8 May 2012 | 1:50 pm
    What happens when your belief in Possibility and your daily Actions are in alignment? Take a look for yourself. Simply beautiful.  

  • Fibromyalgia Awareness Day 2012

    FibroHaven
    7 May 2012 | 7:22 pm
    Come and experience the natural healing energy of Reiki & Restorative Yoga FibroHaven is having a special Healing Clinic for members in the Southern California area. I wish I could spread the love to each and every one of you, but just know this event is in everyone’s honor, and with the intention of bringing as much healing and awareness as I can to my local community. What: FM Awareness Day Free Healing Clinic Where: Inner Strength Yoga & Healing Center 2124 El Camino Real, ste 202 Oceanside, CA 92054 When: 5-7Pm, Saturday May 12, 2012 Cost: Free Details: Come and experience…

  • You Are Beautiful For a Reason

    FibroHaven
    21 Mar 2012 | 10:40 am
    The most beautiful people we have known are those who have known defeat, know suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not just happen. ~Elizabeth Kubler Ros

  • From Pain to Purpose, Passion, and Possibility

    FibroHaven
    13 Mar 2012 | 11:32 pm
    I have spent the last week in a flood of love! I am overwhelmed with gratitude for the many positive responses I have received about the article I wrote for Woman’s Day Magazine. Here are just a few of your comments: “My daughter called to tell me about the article. It was good for her to hear about FM from someone else. The more voices talking about our issues, the better. Thank you and thank Woman’s Day.”  ~Susan “Happy congratulations! I imagine when one’s mission is to “inspire and encourage,” it’s an invitation for divine blessings on such profound…

  • Keep Your Heart in Wonder

    FibroHaven
    12 Mar 2012 | 7:30 pm
    Kahlil Gibran on Pain Your pain is the breaking of the shell that encloses your understanding. Even as the stone of the fruit must break, that its heart may stand in the sun, so must you know pain. And could you keep your heart in wonder at the daily miracles of your life, your pain would not seem less wondrous than your joy; And you would accept the seasons of your heart, even as you have always accepted the seasons that pass over your fields. And you would watch with serenity through the winters of your grief. From Kahlil Giran’s The Prophet
 
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    Una Vita Bella

  • Savor It!

    Abeeliever
    22 Apr 2012 | 11:36 pm
      For several months I have felt, well, um, oppressed. Truly, I have been depressed (at times, even earlier this week, very much so). It has been oppressive and sad and all of the dark things that you think about depression. I don’t know if this weekend is some kind of breakthrough or if it is just a moment of reprieve. Either way, I’ll take it. I have enjoyed a couple of days of not feeling so heavily weighted by life, more like a couple of days filled with more moments of relief as well as some more moments of motivation, and as I realize this I am over-joyed. I feel some…

  • Just a Whisper

    Abeeliever
    26 Feb 2012 | 1:08 am
    For the first time, not the first time ever, but for the first time in a very long time, I am afraid to write. I am scared to write about the topics I am most passionate about and scared to expose myself to this big and scary world. Before now, I was safe as a health activist surrounded by other health activists. I was safe in my blogging community, in the arms of others who lived and wrote about similar topics as I… I was comfortable addressing the challenges of my life with those who understood. I took for granted how easy it was to write and speak out when I was embraced and welcomed…

  • I Haven’t Forgotten

    Abeeliever
    19 Jan 2012 | 10:46 pm
    You may or may not know that I am now working full-time. I am a single parent now and I am living a busy and hectic life. I have fibromyalgia, but I certainly don’t look the picture, if there is one. What I think is amazing is how I have been able to do so much more than I thought I could even a year ago, it truly does feel miraculous… but what I sometimes wonder is “how long can I keep this up?” or sometimes I just selfishly wish people knew that things were hurting and difficult, sometimes I wish people knew that things might be harder for me. But mostly, I am simply…

  • Tug of War

    Abeeliever
    7 Jan 2012 | 6:20 pm
    Life feels so messy today… like that build up of laundry that somehow multiplied over night into an enormous heap, things sometimes feel insurmountable. I know I am not alone in juggling all of the many things entailed in raising children as a single mother, working full-time, paying bills, buying groceries, doctors appointments, social obligations, etc. All of us cope with these things on some level. I don’t want to play the fibromyalgia and depression cards either. While not everyone copes with those issues, we all have something, don’t we? For some of us it is just more…

  • Hello Good Friend

    Abeeliever
    7 Dec 2011 | 8:19 pm
    Image by Big Grey Mare via Flickr It has been so long since I have written, I am unsure of whether or not to even try… I am unsure of who I will write for anymore. I suppose, as it all began, I am writing for me. My absence has felt so long, but all the while I have thought of my blog like a good friend that I let down by disappearing into the whirlwind of this life. I have thought of you, my readers, I have thought of myself, the pieces of me that I left here open, breathing, sometimes seeming lifeless but always still alive in my words. I have wondered if I could ever return, for what…
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    Graceful Agony

  • Nothing, but THANK YOU for asking

    gracefulagony
    30 Apr 2012 | 10:41 am
    The questions I hate most these days are ‘What are you doing? ‘, ‘So what have you been doing lately?’, and my all time fave, ‘So what is it that YOU do?’ (that one is usually asked by people I first meet in relation to what career path I’ve chosen) What DID, DO, or WILL I? Absolutely nothing, thanks for asking!!! Well of course that’s not what I say…. I mean, not out loud anyhow. I usually say ‘not much’ or mumble how being a Mom keeps me busy (If they only knew my son is in Grade 5, makes his own lunch every day and is very…

  • FRUSTRATION

    gracefulagony
    17 Apr 2012 | 12:03 pm
    For the last 3 years I have been seeing a pharmacist/consultant and my Doctor on a monthly basis to try to come up with the right ‘cocktail’ or combination of medications to help me manage my pain. It has been one of the hardest ‘tests’ of patience, and one of the most deflating experiences of my life.  Don’t get me wrong, I am not looking for the ‘magic’ pill to cure everything that ails me.  I gave up on that a long long time ago.  I know that I most likely will have to deal with all of these issues for the rest of my life, and for the most part…

  • I’ve been missing you……

    gracefulagony
    17 Apr 2012 | 11:09 am
    It has been such a long time since I was here. And so many things have happened in my life since then… I hardly know where to start. Writing has always been healing for me, and I have truly missed it, but for many reasons, I had to take a break.  I am hoping that break is over now, and that I can rejoin this amazing on-line community!  And do you know how awesome and inspiring this on-line community is??? I will tell you!! Since I stopped writing, Graceful Agony has still remained strong!!  I was shocked to learn that this site has had over 63 THOUSAND HITS!  63,429 to be exact!! …

  • Where I have been….

    gracefulagony
    13 May 2011 | 11:09 am
    It has been a long time dear friends…. I know it has been a few months since you have seen me around these parts… and trust me… I missed all of you more than I can say… I want to be honest with all of you as to where I have been, and what I have been up to.  It isn’t easy for me to do that, as I have BIG expectations of myself… I took a bit of a fall, and it isn’t something I am all too proud of, but it is the truth… I am human… I fall some times… but at least I know, from experience, that I always find a way to pick myself back up,…

  • What you don’t see… National Fibro Awareness Day

    gracefulagony
    12 May 2011 | 1:13 pm
    When you look at me, there are many things that you don’t see… You don’t see the millions of tears I have shed, or the way my heart breaks each time my pain prevents me from doing all the things that most take for granted. You don’t see the many times I have had to cancel on my friends, or eat my meals in bed. When you see me smile, you don’t see the intense pain that flows through my body, every minute of every day - the copious handfuls of pills I have taken, or the way my pain breaks my Mom’s heart. You don’t see the helplessness my Dad feels, or…
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    Oh My Aches and Pains!

  • 15 Ways Hepatitis C Treatment is Kicking My Butt

    Selena MKI
    26 Apr 2012 | 9:04 am
    In eight weeks, I've moved from the hard part of Hepatitis C treatment into the uphill climb portion of the journey.   So today I am going to share some very personal details about the many ways Hepatitis C treatment is kicking my butt.  I do this partly to vent and partly to educate.  Think of this post as a behind-the-scenes look at what Hep C treatment is really like and then file this under TMI--as in, too much information. For starters, I didn't know that between weeks 8 and 12, the full effects and side effects of the Hep C medications rear their ugly heads. …

  • Health Care Professionals Can Be Idiots Too

    Selena MKI
    13 Apr 2012 | 10:10 am
    Health care professionals can be idiots too.  There, I said it.  Yup, they can be just as stupid, ignorant and clueless as the rest of us...only their mistakes and missteps can have life-altering, and sometimes life-ending, results.  Based on this alone, I want to hold them to a higher standard.  Only I am quickly learning that what I want to do and what I need to do are two completely different things... No Respect for My Pre-Existing Conditions Truth is, I don't want to have to be writing this post and letting you know that things are not going smoothly for me.  I…

  • My Life, While on Hepatitis C Treatment

    Selena MKI
    11 Apr 2012 | 7:43 pm
    Welcome to Wordless Wednesday, where the focus is on visual images. Please visit Oh My Aches and Pains! for more great reading.

  • The Emotional is Just a Tiring as the Physical

    Selena MKI
    5 Apr 2012 | 10:34 am
    I know it is Thursday.  But the truth is I am still recovering from last Thursday.  Finding out my aunt passed away, after getting a blood transfusion earlier in the week, on top of coping with a painful new sore in my right nostril and dealing with the ongoing side effects from my Hepatitis C treatment, quickly wiped me out. I hate when that happens... I also hate how I continue to underestimate just how draining dealing with the emotional can be. Dealing with the death of my aunt was a huge emotional upset to process.  And as loss often does, this recent one brought up…

  • My Hep C Treatment: A Pit Stop at the Emergency Room

    Selena MKI
    29 Mar 2012 | 9:29 am
    If you follow me on Facebook or Twitter, then you probably already know that I made a little detour Monday to the Emergency Room to get a blood transfusion. As I explained here, a low red blood cell count is a side-effect of ribavirin, my pink "girl power" pills, and my latest blood work from last Sunday showed that my hemoglobin had gotten too low. Here is a chart that shows exactly what has been happening to my hemoglobin count: Time Frame Hemoglobin level before treatment 13.5 (normal) treatment week 2 10.5 treatment week 3 8.5 treatment week 4 7.8 Now compare my values with the normal…
 
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    A Grateful Road

  • National Women’s Health Week May 13th

    Laura
    12 May 2012 | 2:24 am
    A very dear friend and nutritional practitioner reminded me that this upcoming week is “National Women’s Health Week”, May 13 – 19 I thought it would be a great time to revive my posts on this blog, since my health has taken such a good turn in the last 6 months! I can’t begin to express the depth of gratitude I feel for my better health, and reduced pain. It’s a relief and a pleasure to participate in life again on so many levels! National Women’s Health week speaks to prevention and care for women, not post illness care, medication, surgery etc.

  • Shifting Your Focus To Serving Others

    Laura
    11 Jan 2012 | 9:50 pm
    A simple lesson that my dear mother taught me years ago, proved itself quite well recently. The most beautiful part was that it was proven through the person who taught it to me!! My mom always said: “The surest way to feel better when you are depressed is to take the focus off yourself and put it on someone in need of help..You’ll quickly forget your own problems, and remember that you play a larger role in the world, that can make a significant difference”   Growing up I remember my mom telling me to help others and stop focusing on myself and my needs, as young…

  • An Eternal New Beginning For My Mother

    Laura
    27 Dec 2011 | 1:17 pm
    The past two weeks have been very emotional ones for me and my family. My 92 year old beautiful mother was diagnosed with “metastasis of unknown origin” and passed away on December 20, 2011. She was a very classy, sharp, and youthful woman, who lived life to the fullest and touched many lives. My mother was a professional woman, with a journalism degree from USC, who loved to study many things, including astrology. She plotted charts for people on her Apple computer back in the 70′s when NO ONE had a home computer, or knew who Steve Jobs was. She loved metaphysics, world…

  • The Power in Connection and Support

    Laura
    28 Nov 2011 | 6:22 pm
    I have never been one to reach out for support in my life; especially when I need it the most. When I am in trouble, I do just the opposite..I isolate myself, and cut off from the people I need the most! Do you think that’s a trait in people who suffer with chronic pain and depression? When I was first misdiagnosed with MS many years ago, I walked into a support group, spent about 10 minutes, turned around and walked right out. It spooked the heck out of me. I was afraid to identify myself as a “sick” person, and did not want to ask for help. I thought I could be strong,…

  • Oh My Aches and Pains! Featured Blog of The Week

    Laura
    16 Nov 2011 | 10:40 pm
    I am extremely excited to talk about my featured blog of the week, Oh My Aches and Pains! Selena, its  author shines as a strong woman with a very sensitive and witty tone, that warms and informs! Selena knows pain all too well, as not only a leukemia cancer survivor, but all the residual issues that ensued as a result. You can read all about it on her about page here. You can find lots of great posts about living with fibromyalgia, chronic fatigue as well as Hepatitis C, dysautonomia, diabetes, and other aspects of chronic illness. Oh My Aches and Pains! is a pleasure to visit and read…
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    CreativitytotheMAX

  • This is for You Tresy

    MentalMakeovers
    9 May 2012 | 9:33 pm
    In the early 1970′s I had a German Short-Haired Pointer.  She came to us when she was 3 years old.  Her name was “Tres”.  She was beautiful.  One hundred percent dark “liver colored except for the tip of her tail and  3 (tres) large, solid white spots down her back .    Field trained, she knew [...]

  • The Adventures of B & B , The Dénouement

    MentalMakeovers
    8 May 2012 | 11:25 pm
    The Adventures of B & B by Cathy D. Part III Dénouement, Resolution, or Catastrophe? B and B decided to split up when they reached Penney’s. Neither wanted the other to know what size undies she wore. And Busybody wanted to check out junior lingerie just in case they had something fun and flirty she [...]

  • The Adventures of B & B, PARTS I & II

    MentalMakeovers
    8 May 2012 | 8:14 pm
    Therapeutic Creative Expression comes in MANY forms. One of my favorite people, Cathy, sent me this 3 part story that is a superb example of her own Therapeutic Creative Expression for those who have entered their twilight years.  I have taken the liberty of titling each part and pointing out the morals that the author has [...]

  • It’s Hard being Human.

    MentalMakeovers
    7 May 2012 | 11:08 pm
    I snapped at my husband today.  I felt justified to boot. Why would a therapist, who KNOWS relationship dynamics, why would a therapist who counsels others on how to conduct themselves to make their life better, why would a therapist respond in such an unhealthy way? Why would a woman with a husband and friends [...]

  • “F” Words

    MentalMakeovers
    7 May 2012 | 7:11 pm
    Those of you who know me, KNOW how pristine, proper and perfect I am. However, I was throwing around lots of “F” words:  Fibro, Focus & Faith!  at The National Fibromyalgia Awareness Day sponsored by FANN - Fibromyalgia Awareness National Network  and The Fibromyalgia & Chronic Pain Center at Cal State University, Fullerton directed by Jessie Jones, Ph.D.. After my [...]
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    Oh My Aches and Pains!

  • 15 Ways Hepatitis C Treatment is Kicking My Butt

    Selena MKI
    26 Apr 2012 | 9:04 am
    In eight weeks, I've moved from the hard part of Hepatitis C treatment into the uphill climb portion of the journey.   So today I am going to share some very personal details about the many ways Hepatitis C treatment is kicking my butt.  I do this partly to vent and partly to educate.  Think of this post as a behind-the-scenes look at what Hep C treatment is really like and then file this under TMI--as in, too much information. For starters, I didn't know that between weeks 8 and 12, the full effects and side effects of the Hep C medications rear their ugly heads. …

  • Health Care Professionals Can Be Idiots Too

    Selena MKI
    13 Apr 2012 | 10:10 am
    Health care professionals can be idiots too.  There, I said it.  Yup, they can be just as stupid, ignorant and clueless as the rest of us...only their mistakes and missteps can have life-altering, and sometimes life-ending, results.  Based on this alone, I want to hold them to a higher standard.  Only I am quickly learning that what I want to do and what I need to do are two completely different things... No Respect for My Pre-Existing Conditions Truth is, I don't want to have to be writing this post and letting you know that things are not going smoothly for me.  I…

  • My Life, While on Hepatitis C Treatment

    Selena MKI
    11 Apr 2012 | 7:43 pm
    Welcome to Wordless Wednesday, where the focus is on visual images. Please visit Oh My Aches and Pains! for more great reading.

  • The Emotional is Just a Tiring as the Physical

    Selena MKI
    5 Apr 2012 | 10:34 am
    I know it is Thursday.  But the truth is I am still recovering from last Thursday.  Finding out my aunt passed away, after getting a blood transfusion earlier in the week, on top of coping with a painful new sore in my right nostril and dealing with the ongoing side effects from my Hepatitis C treatment, quickly wiped me out. I hate when that happens... I also hate how I continue to underestimate just how draining dealing with the emotional can be. Dealing with the death of my aunt was a huge emotional upset to process.  And as loss often does, this recent one brought up…

  • My Hep C Treatment: A Pit Stop at the Emergency Room

    Selena MKI
    29 Mar 2012 | 9:29 am
    If you follow me on Facebook or Twitter, then you probably already know that I made a little detour Monday to the Emergency Room to get a blood transfusion. As I explained here, a low red blood cell count is a side-effect of ribavirin, my pink "girl power" pills, and my latest blood work from last Sunday showed that my hemoglobin had gotten too low. Here is a chart that shows exactly what has been happening to my hemoglobin count: Time Frame Hemoglobin level before treatment 13.5 (normal) treatment week 2 10.5 treatment week 3 8.5 treatment week 4 7.8 Now compare my values with the normal…
 
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  • AIN'T NO CURE FOR THE SUMMERTIME BLUES

    Rosemary Lee
    15 May 2012 | 9:59 am
    It makes no sense. I live in Las Vegas. I hate the heat. I have to say one thing about Fibromyalgia. The internal thermostat definitely doesn't work! I don't like it too hot and I don't like it too cold. I don't like it real windy. I love the rain but I hate the humidity.  Mostly, I hate the heat. Living in Las Vegas in the summer is like standing in front of a hair dryer. Just turn it on and point it at your face and voila! You're in virtual Vegas. We are almost to triple digits and I'm just not ready for it. The way I see it is that you can put on sweaters and jackets to stay warm but…

  • WALK MORE MILES IN MY SHOES

    Rosemary Lee
    7 May 2012 | 2:34 pm
    Fibromyalgia Awareness Day is May 12. Walk more miles. In my shoes. Sigh. Anyone who knows me knows that I LOVE shoes. My closet is filled with them and Nordstrom's anniversary sale was my nirvana. I'd go through those racks of shoes and with a huge smile on my face buy all sorts of heels (at least 3 inch because anything less was totally unacceptable) for me and for my daughter. So, for me, it is fitting to bring my shoes along to my Fibromyalgia Awareness Day post. Gorgeous, black, sexy, high heel pumps. I don't know about anyone else but I felt like a million bucks when I wore them. If you…

  • REWIRING THE CIRCUITS

    Rosemary Lee
    24 Apr 2012 | 2:05 pm
    My body is like the computer. The hard drive isn't functioning. I've had an interesting time lately. Ever since those fricking epidural shots my body has had a mind of its own. Every coping mechanism that I have used to control the pain hasn't worked. I had become a master of control. I even congratulated myself on that fact.  Even though the pain was ever-present, I had coping mechanisms that I would use to exert some sort of control over my body. Anything and everything would be tried and tested so that the days spent curled up in a fetal position would be minimized. I know that I…

  • MORE THAN A FEELING

    Rosemary Lee
    13 Apr 2012 | 7:08 pm
    Am I more than this illness?There are days I'm not sure.This is one of them. Who was I before chronic illness? I know there were definite parts of my personality that have disappeared. I try hard to separate the two because it has been so long that I'm not really sure how to do it anymore.  So who am I? I'm still a cynic. I don't think that part of me will ever go away and I wouldn't want it to. That part of me keeps fighting the doctors who want me to just slug down a few pills and go away. The cynic that hates the invisibility and yet embraces it. The cynic that questions every thing…

  • LAY ME DOWN ON A BED OF ROSES

    Rosemary Lee
    12 Apr 2012 | 12:26 am
    Ow, Ow, Ow.A bed of roses sounds good right now.Not what I got. Ever since I got the epidural injections I've had a difficult time getting a handle on the pain. It not only didn't help the pain but it actually made the symptoms worse. For some reason the pain is just not going away. Is it the injections or is it a doozy of a Fibromyalgia flare? I wish I knew. I'm trying to continue the movement. I know that it helps but, that too, has been a struggle. I go back to the pain management doctor tomorrow and I'm going to address the increase in pain. It's a delicate balance. I've been on the same…
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