Fibromyalgia

 
  • add this feed to my.Alltop
    About.com: Fibromyalgia & Chronic Fatigue Syndrome

  • XMRV & Updated Mechanism Theory of Chronic Fatigue Syndrome

    4 Nov 2009 | 8:00 pm
    The XMRV Discovery Series Dr. Daniel Peterson, one of the researchers involved in the possibly groundbreaking XMRV findings, testified before the NIH's Chronic Fatigue Syndrome Advisory Committee Oct. 29. Among the many things he presented was an updated theory of how chronic fatigue syndrome (CFS or ME/CFS) develops. (Thanks to Dr. David S. Bell and his newsletter, Lyndonville News for putting this into language that was easier to understand!) You are, somehow, infected with XMRV. The retrovirus may enter your body along with another virus (basically "piggybacking"), such as Epstein-Barr or…

  • XMRV Lab Tests: Should Chronic Fatigue Syndrome Patients Get Tested?

    2 Nov 2009 | 10:00 pm
    The XMRV Discovery Series It certainly doesn't take long for things to come out of the woodwork on the heels of reported scientific breakthroughs. Already, some labs are offering very expensive tests for XMRV, the retrovirus researchers have preliminarily tied to chronic fatigue syndrome and possibly fibromyalgia. Now a lot of people are asking, "Should I get tested?" The doctors and researchers who've spoken out about these tests say, don't waste your money. Even if you get a positive test, we don't yet know what to do about it. One commenter here recently said she wanted to be tested,…

  • Chronic Fatigue Syndrome: Dr. Lerner on Ampligen, XMRV

    2 Nov 2009 | 6:00 pm
    Dr. A Martin Lerner: Thoughts on XMRV (Updated), Ampligen In my recent conversation with Dr. A. Martin Lerner, a former chronic fatigue syndrome sufferer who says he used his specialty in infectious diseases to find treatments for himself and others, I asked him about both the XMRV discovery (which was just days old at the time) and also about Ampligen, the proposed chronic fatigue syndrome drug currently awaiting FDA approval. XMRV XMRV is a retrovirus that researchers recently linked to chronic fatigue syndrome (CFS or ME/CFS). Dr. Lerner says that in his patients, he's discovered that 3…

  • Jaw Pain in Fibromyalgia & Chronic Fatigue Syndrome

    1 Nov 2009 | 10:00 pm
    November is TMJ Awareness Month A lot of us with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) have jaw pain, and in many cases it's not a symptom but a co-morbid condition -- temporomandibular joint disorder, better known as TMJ. TMJ can cause several symptoms that aren't typically part of FMS or ME/CFS, including: Jaw pain Difficulty chewing Painful clicking in the jaw Locking jaw I've been dealing with TMJ issues lately, and actually got the official diagnosing after having symptoms for about 15 years that were just too mild to worry about. The difference? I've apparently…

  • Painful Bladder in Fibromyalgia & Chronic Fatigue Syndrome

    30 Oct 2009 | 5:01 pm
    Oct. 31 is Interstitial Cystitis Awareness Day A lot of people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) develop bladder pain and other bladder-related symptoms that can be severe. These symptoms, though, are NOT related to FMS and ME/CFS -- at least not directly. A condition called interstitial cystitis (IC) is a common overlapping condition for us. It can cause abdominal or pelvic pain, and it can mimic a urinary tract infection. In fact, it's so frequently misdiagnosed that most people have IC for about 4 years before they're diagnosed correctly. If you develop…
  • add this feed to my.Alltop
    The Fibromyalgia Experiment

  • I’m Skipping this Holiday

    Sarakastic
    31 Oct 2009 | 10:00 am
    I’m just too tired to celebrate Halloween. It just seems like a lot of work. People have mentioned that I should put up some autumn decorations. First I’d have to go buy some, even if it was just simple like a wreath. Then I would have to physically put up the wreath and then later take it down. I doubt I’ll even decorate for Christmas. I just don’t have the energy. It takes everything I have to find acne treatments, work, exercise, cook and keep the apartment looking nice. I just don’t have any energy for extras like parties, celebrations or decorations and that…

  • Yes That Would be Nice

    Sarakastic
    30 Oct 2009 | 6:36 am
    Since I switched to a more technical job from a writing job I’ve been worrying about my hourly pay. I’m still working on my own sites and blogs because I love residual income. When I first started working from home I just wanted a job. I was sick of scams. I wanted to make minimum wage even, anything that would help me to actually work with fibromyalgia. Over the years I guess I’ve kind of gotten sucked in by the internet mentality: just work a few hours and make lots of money. Granted, that never worked for me, I was putting in crazy work weeks for mere pennies. Now…

  • How to Deal with Winter

    Sarakastic
    28 Oct 2009 | 6:34 am
    It seems like autumn left in a blink of an eye. I only saw a few yellow leaves, most of the trees were still green. The next morning the leaves were frozen and brown. That’s what I get for living in Utah. Oh well at least it’s almost time for ski vacations. With winter comes fibro flares and my constant struggle just to keep warm. I think it will be a lot better this year because I’ve moved to a warmer climate but I’ll still have to deal with less than ideal temperatures, even if I won’t be battling all the snow anymore. Here is my list of winter must haves:…

  • Yes, It’s That Important

    Sarakastic
    28 Oct 2009 | 6:24 am
    If you haven’t watched Flipping Out it really applies to working from home. Jeff and Ryan both own separate companiess. Jeff flips houses and Ryan designs but they don’t work on every project together. They hire a team and contractors and other people to actually wear the work gloves. Jeff is basically the star of the show, he puts the flipping out in Flipping Out. The rest of the people are just the ones that have to deal with him. He does have a tendency to be paranoid so I thought maybe that was what was going on when he turned on Ryan. I watched the marathon and reunion show…

  • My Wildest Dream

    Sarakastic
    22 Oct 2009 | 4:36 pm
    It’s common to fantasize about what you’d do if you won the lottery. This is especially impossible in my case because my state doesn’t have a lottery. If money were no object I would sleep. That’s right, sleep. Eventually, I would travel, but first I would sleep. Granted, I know that it doesn’t take money to do this, but I have a lot of responsibilities at work that require me to be awake a lot. No, I’m not depressed, I’m just tired. I can never seem to be able to get enough sleep. I would just sleep whenever I wanted and whenever I was tired.
 
  • add this feed to my.Alltop
    My Life with Fibro

  • Is it just me? Fibromyalgia and a Lack of Emotion

    Kate Blaylock
    17 Oct 2009 | 7:33 pm
    I don’t have a lot to say.  But I do have to say this. I am sorry.  I haven’t posted an article in nearly two months.  I have, however, written a half dozen posts in as many weeks.  I have no good reason for not posting them.  I do, however, have a confession… Sometimes people, ideas, and things produce absolutely no emotional response from me.  I am sure science can easily disprove that statement.  But I’m serious.  I find some people neither interesting nor dull.  I think some ideas are neither brilliant nor stupid.  I find some things neither worth my time nor worth…

  • Keeping Less, Living More, Part 1: Breakthrough

    Kate Blaylock
    25 Aug 2009 | 9:36 pm
    Since I returned from vacation on July 5th I’ve been a nearly-crazy-Kate about getting rid of things.  Though I am not sure what triggered my new clarity, I do know I can no longer handle excess stuff… tangible stuff, paper stuff, emotional stuff, unnecessary stuff.  To be frank, I can barely handle the necessary stuff. It started in our master bathroom and spread to our master bedroom and then to our closet.  I removed unnecessary items from the shower as well as the countertop, streamlined under-sink storage, recycled empty bottles, and disposed of a large bag of trash.  I corralled…

  • Chronic Pain and Cortisone, Part 2

    Kate Blaylock
    30 Jul 2009 | 8:30 pm
    If you have not yet read Chronic Pain and Cortisone, Part 1, please do so now. When it came time for Dan to head to the fitness center, for my second post-cortisone trip (6 days after the injections),  I chose to stay home and enjoy my still-increasing soreness.   But I felt a bit guilty and thought I should at least do something to continue forming a habit of making fitness a priority, so I vowed spend some time with wiiFit. And I did. For all of 60 seconds. I don’t know what happened, but standing on the wiiFit board aggravated my back almost instantly.  It was all I could do to gut…

  • Chronic Pain and Cortisone, Part 1

    Kate Blaylock
    15 Jul 2009 | 9:48 pm
    I started writing this post, but I quickly got sidetracked by something that completely changed what I have to say.  This will be a two part post. Last night, after months of babying my back, I decided to head to the gym with the guys.  You see, my husband meets a friend to workout every night at nine.  And I love working out at nine.  In fact the whole tradition was my idea.  Well, the latter half.  I worked out nearly every night at nine during my summers home from college.  It did wonders for me.  It helped me turn my freshmen 15 into the sophomore sans 10.  It strengthened my…

  • I Read: Stepcase Lifehack or Fibromyalgia and (Chronic) Pain and Posture

    Kate Blaylock
    6 Jul 2009 | 8:01 pm
    I am a regular reader of Stepcase Lifehack.  I appreciate the variety of ideas they discuss and often enjoy attempting to heed their advice.  Although the content usually has little to do with My Life with Fibro, last Tuesday they featured an article of particular interest to me by fitness coach, Jamie Nischan. Nischan’s article closely echoes the advice I received during one of my recent trips to my chiropractor, Dr. Delilah.  He highlights body-friendly postures for driving, working, and sleeping and does a good job reminding you that the little things do, indeed, matter. Before I left…
  • add this feed to my.Alltop
    WordPress Tag: Fibromyalgia

  • What to do...

    autoimmunelife
    6 Nov 2009 | 8:21 pm
    Grrr….. so I hate the thought of cutting people out of my life. I want to say that first and foremost. There are a lot of reasons I feel that way, including if I were to cut out everyone who ever irritates me I’d be pretty damn lonely and I know it. However, I also know I need to take care of me, and the stress some people bring just makes me worse. There are some people who either never seem to know the right thing to say or who just don’t even try. I realize I’m not going to have everyone’s support 100% of the time. I also realize that I need to try not to…

  • Do you really want to heal or 'just get rid of' your symptoms?

    kimlk1
    6 Nov 2009 | 7:26 pm
    The difference between healing and fixing One of the most common phrases I hear from clients is they ‘want to get rid of their symptoms’. And if I had been given a dollar every time a client asked me “Will you fix me?”, and even “Will you fix me in one session?”, I would have a lot of dollars in the bank! I have learnt (and am still learning through my own personal experience), that there is a huge difference between healing and fixing. So this is the topic of this post. By the time people start noticing symptoms – whether it be of emotional, mental…

  • Intro

    catherinexcatastrophe
    6 Nov 2009 | 6:09 pm
    I am Catherine, or catherinexcatastrophe (my other blog is catherinexcatastrophe.wordpress.com).  This is my wellness blog, where I’ll log all my health and well-being findings for you to ponder and maybe try out. I care a lot about my health, but, like most of us, I don’t have the time to run miles every day or prepare fresh-cooked meals ALL THE TIME.  I’m a student looking for a “quick fix.” Besides a student, I’m a singer, actress, and avid biker (among other things, such as activist, mediator, and go-to-man).  With my busy schedule, I figure I need…

  • ignore my pain, i'll ignore your love...

    kimberlysawczuk
    6 Nov 2009 | 11:27 am
    …and what makes it all worse, is that NOBODY gets the real pain brought on by fibromyalgia and how much it both worsens other pains, and other pains add more stress….making the original fibromyalgia pain worse. confused?? let me simplify it some…HAVING FIBROMYALGIA HURTS LIKE YOU WANT TO DIE!!! AND MEDICINE, YES PAIN MEDICINE IS SOMETIMES REQUIRED IN KEEPING SOME SMALL QUALITY OF LIFE SO WE/I DON’T FUCKING HURT SO MUCH, ALL THE FUCKING TIME!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! it’s a sick vicious cycle. one i did not create!!! all the while people, family…those…

  • Fibromyalgia and Medical Marijuana

    editors
    6 Nov 2009 | 10:03 am
    Source: WebMD)  Fibromyalgia, a chronic pain syndrome, is hard to treat and impossible to cure. With pain so debilitating, patients may wonder about trying medical marijuana to ease their discomfort. Still widely controversial, “medical marijuana” refers to the smoked form of the drug. It does not refer to the synthesized version of THC, one of the active chemicals in marijuana, that’s available in a medication called Marinol. The FDA first approved Marinol (dronabinol) in 1986 for nausea and vomiting from chemotherapy. It later approved its use for nausea and weight loss…
 
  • add this feed to my.Alltop
    Fibromyalgia Haven

  • Things I Love #9: Gluten Free Peanut Butter Cookies

    fibrohaven
    5 Nov 2009 | 11:14 am
    I am an adventurous cook. I experiment with ingredients and flavors, seldom making the same dish twice. My husband always encourages me to write my recipes down, but I much prefer to “wing it” and see what tasty concoction I can create next. All the things that make me a spirited chef, make me a horrible baker. I simply have no tolerance for carefully measured preciseness. I learned long ago that baking is not my forte, and I avoid it accordingly. That being said, I recently discovered the easiest and most delicious Gluten Free Peanut Butter Cookie recipe that even this girl can…

  • Relaxation Technique for Pain Control

    fibrohaven
    4 Nov 2009 | 12:32 pm
    Week two of the Pain Coping Skills research study. Following up on the Progressive Relaxation guided technique of week one, in week two we learned a simple and useful technique called Mini-Practices. Mini-Practices For relaxation to benefit you the most, you need to learn how to relax and calm yourself upon your command. This skill can be very helpful when you are feeling increased tension or pain, but are unable to go to a secluded area to do progressive relaxation. To Do a Mini-Practice: Stop yourself in whatever you are doing Take a deep breath Say the word “relax” to yourself…

  • Cognitive Coping Skills for the Treatment of Fibromyalgia

    fibrohaven
    26 Oct 2009 | 6:04 pm
    Did you miss me? This time of transition in my life has been trying to say the least. An emotional roller coaster would be a better way to describe it. One second I am excited by possibilities and the next second I am crushed with defeat. Sounds a lot like life doesn’t it? It just so happens that a research study I was slated to participate in months ago started up last week. It is a local study on yoga and cognitive coping skills for the treatment of Fibromyalgia. I was hoping to end up in the cognitive group since I already have a good handle on the yoga, and  since the trials of…

  • Happy First Anniversary FibroHaven

    fibrohaven
    9 Oct 2009 | 1:45 pm
    FibroHaven is One Today! One year ago today I sat down at FibroHaven for the first time and wrote this – Welcome! In my very first post I shared what I hoped and intended to accomplish with my blog: I have found the blogs I like best are the ones whose authors are aware they have an audience, yet they speak with a realness and simplicity.  They are authentic.  I image if I met the author they would be exactly as they sound on their blog. That is the approach I hope to take in my writing.  I want to be real. One year later I think my blog is exactly as real as I was hoping it would…

  • Change, Adaptation, and the Amazing Race

    fibrohaven
    7 Oct 2009 | 1:09 pm
    Change is a constant. We all know that. So if change is constant, the only variable then is in our ability to adapt. I was watching the Amazing Race Sunday night. It really is an interesting study on human nature and the ability to adapt to constant change – to the unknown. It is remarkable how certain temperaments rise to the top as they excel at adapting to unknown situations, while others battle themselves and their own teammates while flailing wildly at the unknown. The ever important clue box is a great example of what I mean. Teams are given a general direction and told…
  • add this feed to my.Alltop
    FightingFatigue.org

  • Still Having Sinus and Ear Fluid Problems Along with Arm/Leg Pain

    Sandy Robinson
    6 Nov 2009 | 5:34 pm
    Today marks the 4th week that I have been dealing with all of this fluid in my right ear and it’s not getting any better. I will have times where I think the fluid and pressure is relieving and then it hits me again full force. Since October 10th I have been on a 10-day course of 300 mg. of Omnicef daily and after I finished that, I was on 10 days of Levaquin, 500 mg. When I went to see the doctor both times about my sinuses and ear fluid, I also told her about the severe pain I have been having in my legs. I know that with Fibromyalgia it’s hard to tell sometimes if that is what…

  • ME/CFS & Fibromyalgia Around the Web

    Sandy Robinson
    5 Nov 2009 | 1:00 am
    Hemispherx Biopharma responding to FDA’s Ampligen questions Hemispherx Biopharma said Monday its plans to “complete all outstanding queries” from the Food and Drug Administration regarding the company’s new drug application for Ampligen this month and next. The Philadelphia biotechnology company is seeking approval to market Ampligen as a treatment for chronic fatigue syndrome. Philadelphia Business Journal Editorial: Researcher’s discovery gives new hope to Chronic Fatigue sufferers The importance of the discovery of a retrovirus that may be the cause of Chronic Fatigue…

  • Using What’s In Your Kitchen to Alleviate Pain & Inflammation

    Sandy Robinson
    3 Nov 2009 | 1:00 am
    More and more people are trying to find more natural and less invasive methods of treating pain and illness these days.  With all of the problems we hear routinely regarding prescription & OTC medication side effects and problems they cause, it isn’t any wonder people are using more natural ways of treating their problems. ChicagoHealers.com Practitioner, Dr. Steven Arculeo, DC, says this about NSAIDs: Each year, the use of NSAIDs (Non-Steroidal Anti-Inflammatory Drugs), account for an estimated 7,600 deaths and 76,000 hospitalizations in the United States. NSAIDs include:…

  • My Journey With Gluten-Free Eating Begins

    Sandy Robinson
    2 Nov 2009 | 1:00 am
    Last week I started cutting gluten out of my diet to see if I will start noticing any difference in my symptoms.  Instead of cutting all gluten products out of my diet at one time, I have been replacing gluten-free items for the regular foods I was eating as I run out of them.  The reason for slowly transitioning is because I know me and I would get too overwhelmed if I cut everything out at once.  I also have to consider having withdrawal symptoms from cutting out all of the gluten at once and I do not need to suffer from anymore symptoms.  I ran out of my favorite wheat bread last week…

  • Guest Blogger Post: The Messages in Physical Pain

    Sandy Robinson
    30 Oct 2009 | 2:00 am
    Please welcome Abigail Steidley, owner of The Healthy Life, LLC Life Coaching Services and blogger of The Vagina Dialogues as guest blogger for this week.  You can read Abigail’s bio at the end of her post. Pain and illness are ways the body sends important information to us. Think of pain as an email or text from your inner, wise self. Before you get angry at your body for sending such a strong message, realize that it’s been trying to speak to you in gentler ways. The body is the conduit for all wisdom from our wiser, higher self. It will nudge you with emotions, physical tension, and…
Log in