Fibromyalgia

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    Google News: Fibromyalgia
  • The Voices of Rheumatoid Arthritis - New York Times

    20 Nov 2009 | 6:41 am
    The Voices of Rheumatoid ArthritisNew York TimesIt has allegedly been demonstrated to mitigate the effects of various autoimmune disorders, like Crohn's disease, chronic fatigue, fibromyalgia and RA. and more »
  • Fibromyalgia/Chronic Pain Center - San Jose Mercury News

    20 Nov 2009 | 12:26 am
    Fibromyalgia/Chronic Pain CenterSan Jose Mercury NewsNationally recognized Fibromyalgia and Chronic pain treatment center. Utilizing the latest in non-invasive approaches to reduce pain, increase energy, HEALTH CARE AND FIBROMYALGIAThe Cypress TimesFibromyalgia Chronic Pain Seminar!San Jose Mercury Newsall 5 news articles »
  • Drug 'could ease symptoms of Down's syndrome' - Telegraph.co.uk

    19 Nov 2009 | 12:01 am
    Times OnlineDrug 'could ease symptoms of Down's syndrome'Telegraph.co.ukThe drug used in the mice is currently the subject of clinical trials for the treatment of fibromyalgia, a disorder which causes widespread pain and fatigue Drug Shows Promise for Slowing Down's Syndrome Mental DeclineChattahBoxBoosting neurotransmitter could reverse Down Syndrome: studyAFPMouse Study Points to Possible Down Syndrome TreatmentMedPage TodayVisit Bulgaria -Scientific Frontlineall 105 news articles »
  • How much pain can you take? - St. Louis Post-Dispatch

    18 Nov 2009 | 10:41 pm
    St. Louis Post-DispatchHow much pain can you take?St. Louis Post-DispatchMcReynolds, 68, of Webster Groves, just has a very low pain threshold, the result of fibromyalgia. Scott Stinson, a competitive doubles tennis player, and more »
  • Becoming Dependent With Fibromyalgia & Chronic Fatigue Syndrome - About - News & Issues (blog)

    18 Nov 2009 | 5:45 pm
    Becoming Dependent With Fibromyalgia & Chronic Fatigue SyndromeAbout - News & Issues (blog)Fibromyalgia changed that for me, and that's been hard to accept. First, I lost my ability to take care of myself, my children and my home.
 
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    About.com: Fibromyalgia & Chronic Fatigue Syndrome
  • Becoming Dependent With Fibromyalgia & Chronic Fatigue Syndrome

    18 Nov 2009 | 12:33 pm
    I've wanted to be a lot of things in my life, and chief among them was always "independent." I had achieved that, and had really proved it to myself when I got divorced 10 years ago -- I was able to move into my own place, quickly pay my way out from under a mountain of debt, and put my life back together largely on my own. After I re-married, I was proud of knowing that I was a capable person and would be able to fend for myself if need be. Fibromyalgia changed that for me, and that's been hard to accept. First, I lost my ability to take care of myself, my children and my home. I simply…
  • Fibromyalgia Pain & Countering Opiate Addiction

    16 Nov 2009 | 10:00 pm
    NEWSBRIEF: Could the answer to the risk of opiate addiction be another drug? The U.S. Department of Defense is willing to spend $1.2 million to find out -- it awarded a grant in that amount to a team of neuroscientists who plan to conduct an animal study to see if a drug called vigabatrin can cut the risk of opiate addiction while not diminishing pain relief. The DOD is concerned about pain management because of the growing problem of under-treatment of pain from war-related injuries, both in active-duty personnel and veterans. In addition, opiate addiction is a growing problem both in the…
  • Funny, Foggy Moments With Fibromyalgia & Chronic Fatigue Syndrome

    15 Nov 2009 | 10:00 pm
    The cognitive dysfunction of fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) is a major problem that can impact our lives as much as pain or fatigue. One thing about the mental fog we get, though, is that sometimes the results are downright funny. A lot of us have problems finding the right word, and I had one of those episodes lately. I noticed that one of my kids had left the digital piano turned on, so I called out, "Who was on the phone last?" I got back a perplexed, "What?" I said again, "Whoever was on the phone last needs to turn it off!" At that point, something…
  • Swine Flu (H1N1) Vaccine & Fibromyalgia/Chronic Fatigue Syndrome

    13 Nov 2009 | 10:00 pm
    The flu vaccine topic is always controversial among those of us with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS), and H1N1 added a whole new layer to that this year. The big fear with the regular seasonal flu vaccine is that it triggers flare-ups in some of us, so the debate is whether a possible flare is worse than the illness -- adding to the mix that the flu typically hits us harder and longer than it does healthy people. The medical community is about as conflicted about it as we are. So, on top of all this comes H1N1 -- a flu that's especially hard on people with…
  • UPDATED: Lawsuit Against Makers of Ampligen for Chronic Fatigue Syndrome

    12 Nov 2009 | 10:02 am
    NEWSBRIEF: (Updated, 11-16-09) Attorneys have filed a class action lawsuit against Hemispherx Biopharma Inc., the makers of the drug Ampligen, which is currently awaiting FDA approval for chronic fatigue syndrome. Court documents claim that the company mislead investors about the status of Ampligen's New Drug Application (NDA) by failing to disclose and misrepresenting the fact that the FDA had requested several reports that it needed before it could even consider the NDA. The suit aims to recover money for investors after a 20% drop in stock value following the company's latest update on the…
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    The Fibromyalgia Research Blog
  • Changes in Hippocampal Metabolites After Effective Fibromyalgia Treatment

    ByTheBay
    8 Nov 2009 | 8:00 am
    The Clinical Journal of Pain just published a case study that evaluates the impact of fibromyalgia on hippocampal brain metabolite ratios. Researchers at the Department of Family Medicine, Anesthesiology and Psychiatry at Louisiana State University's Biomedical Research Institute based this case study on the results of previous studies that used single voxel magnetic resonance spectroscopy (1H-MRS) to reveal an association between fibromyalgia and disruptions in hippocampal brain metabolite ratios in fibromyalgia patients with no psychiatric conditions. The hippocampus is an area of the brain…
  • Elavil (Amitryptiline) vs. Physical Therapy - What Works Better for Fibromyalgia?

    ByTheBay
    8 Nov 2009 | 7:52 am
    In a recently published study entitled Effect of amitriptyline vs. physiotherapy in management of fibromyalgia syndrome: What predicts a clinical benefit?, researchers in Maharashtra, India, compared the efficacy of treating fibromyalgia with amitriptyline (Elavil) versus physiotherapy. The research subjects were 175 fibromyalgia patients at a rural hostpial in Central India. After six months of treatment with physical therapy or amitryptiline, they conducted a follow-up in which they assessed the benefits of the two different approaches. They used the fibromyalgia impact questionnaire (FIQ)…
  • Yet Another Study Showing Decreased Gray Matter in the Brains of Fibromyalgia Patients

    ByTheBay
    12 May 2009 | 9:22 am
    In their study findings, titled Decreased Gray Matter Volumes in the Cingulo-Frontal Cortex and the Amygdala in Patients With Fibromyalgia, researchers at the University Hospital Münster (Germany) present the results of their investigation into the gray matter of fibromyalgia patients. Because previous studies supported the assertion that fibromyalgia involves central pain augmentation, they aimed to find out "whether structural changes in areas of the pain system are additional preconditions for the central sensitization in fibromyalgia." To do so, they performed MRI's and a neuroimaging…
  • Biochemical Basis of Myofascial Pain Syndrome

    ByTheBay
    21 Dec 2008 | 11:35 am
    Uncovering the biochemical milieu of myofascial trigger points using in vivo microdialysis: an application of muscle pain concepts to myofascial pain syndrome is the title of an article published by members of the Rehabilitation Medicine Department of the National Institutes of Health (Bethesda, MD). The article "discusses muscle pain concepts in the context of myofascial pain syndrome (MPS) and summarizes microdialysis studies that have surveyed the biochemical basis of this musculoskeletal pain condition." Myofascial pain condition is extremely common in fibromyalgia patients, though it is…
  • 40% of Patients with Cervical (Neck) Myofascial Pain Syndrome Also Have Fibromyalgia

    ByTheBay
    21 Dec 2008 | 11:27 am
    A study from Selcuk University in Turkey (PMID: 19085177) recently analyzed the demographic features, clinical findings and functional status of a group of cervical (neck) myofascial pain syndrome patients. They evaluated the patients using the short form health survey (SF-36), pain and depression levels, patient demographics and physical examinations. They used the visual analog scale, Beck Depression Inventory, and medical history to evaluate the patients. A total of 82 patients had a diagnosis of cervical myofascial syndrome. Almost 88% of these patients were female, and they were around…
 
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    The Fibromyalgia Experiment
  • The Importance of Flexibility

    Sarakastic
    20 Nov 2009 | 10:24 am
    If I could tell fibromites and friends of fibromites one piece of advice it would be to make your life flexible. I find that I can accomplish a lot if I work at my own pace. That’s why I love my job. It’s so important and helpful that I can work at home when I want. I think that I make more money then if I was working a set 9-5. I know I would crumble within a few weeks or days and the pain and fatigue would just take over. When I feel up to it I whip out the digital cameras and take pictures for blog posts. If I’m not feeling well then I just sit around and type posts and…
  • Today I Dread…

    Sarakastic
    20 Nov 2009 | 10:23 am
    Recently I’ve though about starting a new category on my blog entitled “Today I Dread.” With fibromyalgia even little things become impossible. I try to stay positive on this blog and in life so maybe I’ll try to make a list of all the “impossible” things that I’ve done lately. For instance, my apartment was being inspected which was fine I’m clean by nature. The other part of my nature is always exceeding expectations. The only part of my house that needed help were the water spots on the faucet and the shower walls. It wasn’t a matter of…
  • Going to College with Fibromyalgia

    Sarakastic
    20 Nov 2009 | 10:21 am
    Sometimes I can’t believe that I made it through college with fibromyalgia. The last two years I had to do online because I was too sick to go through college. Since then distance learning has advanced even more. I think it’s vital to find a program where you can work at your own pace and within the parameters that the disease demands. I know a lot about the different online schools and was recently reading about Western Governors University at http://wgu.edu. They have a few degrees that I haven’t seen at other online schools. It’s also a non-profit school so…
  • Everyone Else Should Follow Suit

    Sarakastic
    14 Nov 2009 | 9:44 am
    The freelance site Demand Studios recently announced that it would be offering a health plan. The exact details of the plan haven’t been released yet but should come out sometime next week. I imagine since the site is geared toward independent contractors and freelancers that there will be stipulations. They already mandate that you’ll have to have worked a certain amount in the last three months. I’m curious to see if you’ll have to keep up a steady stream of work in the future just to keep the health plan. The site has assured the workers that it’s actual…
  • Dear Non Fibromites,

    Sarakastic
    14 Nov 2009 | 9:35 am
    If I hesitate when you ask me to perform a simple task like going shopping with you, there is a reason. If you ask me to go do something social and I say no there is probably a reason. It’s not that I don’t like you, it just costs too much. I’m not even talking about monetary amounts. It just upsets the careful balance of my life in a very real way. First off, spending times in large crowds is rarely fun for me. I have to wear shoes, that hurts. Then I have to stand up for a long time, that hurts. This means that the next day I’ll probably be really sick, maybe even…
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    My Life with Fibro
  • Is it just me? My Life with Postural Orthostatic Tachycardia

    Kate Blaylock
    17 Nov 2009 | 7:29 pm
    1985 When I was six months old I began to throw up and continued to do so until I became non-responsive.  I was dehydrated.  They admitted me to the hospital and said I’d be out in 24 hours… when my heart rate came back down.  It never really did, so they released me from the hospital with a resting heart rate of 160bpm.  Doctors didn’t want my heart-rate to go above 200, so they told my parents to keep me “relatively calm.”  My mom worried when I cried, because my heart-rate increased.  Lucky for her, and much thanks to her answered prayers for my crying to stop, I became…
  • Is it just me? Forgetting Just How Bad the Pain Can Be

    Kate Blaylock
    8 Nov 2009 | 7:10 am
    Sometimes, even after over a decade with fibromyalgia, I have to be reminded just how bad things can get. Sometimes, I forget how everything can hurt.  Sometimes, I am surprised by how quickly the pain flares up.  Sometimes, I am pleasantly surprised by how quickly the pain fades away.  Today is not that day. Today I woke up three hours early just because I couldn’t stand to stay horizontal another minute.  Today I remember how badly I can hurt.  Today I wonder how long this flare will last.  Today I’ll settle for NaNoWriMo and cozy blankets. Tomorrow I will head back to work.
  • Is it just me? Fibromyalgia and a Lack of Emotion

    Kate Blaylock
    17 Oct 2009 | 7:33 pm
    I don’t have a lot to say.  But I do have to say this. I am sorry.  I haven’t posted an article in nearly two months.  I have, however, written a half dozen posts in as many weeks.  I have no good reason for not posting them.  I do, however, have a confession… Sometimes people, ideas, and things produce absolutely no emotional response from me.  I am sure science can easily disprove that statement.  But I’m serious.  I find some people neither interesting nor dull.  I think some ideas are neither brilliant nor stupid.  I find some things neither worth my time nor worth…
  • Keeping Less, Living More, Part 1: Breakthrough

    Kate Blaylock
    25 Aug 2009 | 9:36 pm
    Since I returned from vacation on July 5th I’ve been a nearly-crazy-Kate about getting rid of things.  Though I am not sure what triggered my new clarity, I do know I can no longer handle excess stuff… tangible stuff, paper stuff, emotional stuff, unnecessary stuff.  To be frank, I can barely handle the necessary stuff. It started in our master bathroom and spread to our master bedroom and then to our closet.  I removed unnecessary items from the shower as well as the countertop, streamlined under-sink storage, recycled empty bottles, and disposed of a large bag of trash.  I corralled…
  • Chronic Pain and Cortisone, Part 2

    Kate Blaylock
    30 Jul 2009 | 8:30 pm
    If you have not yet read Chronic Pain and Cortisone, Part 1, please do so now. When it came time for Dan to head to the fitness center, for my second post-cortisone trip (6 days after the injections),  I chose to stay home and enjoy my still-increasing soreness.   But I felt a bit guilty and thought I should at least do something to continue forming a habit of making fitness a priority, so I vowed spend some time with wiiFit. And I did. For all of 60 seconds. I don’t know what happened, but standing on the wiiFit board aggravated my back almost instantly.  It was all I could do to gut…
 
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    WordPress Tag: Fibromyalgia
  • MRI

    marfmom
    20 Nov 2009 | 12:20 pm
    Headed in for an MRI of my spine this afternoon. The pain specialist I saw a few weeks ago ordered it to see if the fibromyalgia is really just nerve damage due to spine changes from Marfan. Don’t get me started on the grief it took to get this scheduled, but for once it wasn’t the insurance company’s fault! Go figure! Anyway, I just got off the phone with the scheduler and she said it will be sometime in JANUARY before I can get my next appointment, to even DISCUSS medication or physical therapy/acupuncture (which I’d prefer). My initial appointment was 4 weeks ago.
  • Be a Warrior: Overcoming Arthritis - Ashley Boynes, Community Development Director, WPA Chapter

    arthritisfoundationwpa
    20 Nov 2009 | 10:08 am
    Overcoming the obstacles that arthritis presents isn’t “easy” for anyone! Difficulties show up for people of all ages and ability levels. I can say, however, that overcoming arthritis IS something that definitely can be done! As author Melinda Winner (“Cooking with Arthritis“) once said, we are arthritis survivors – not arthritis sufferers. Many “warriors” (as I like to call us) deal with chronic and sometimes debilitating pain and illness on a daily basis, but we fight through it. This week’s Arthritis Radio guest, Pennsylvania State Representative Jennifer…
  • Going Down Memory Lane

    Rest Ministries
    20 Nov 2009 | 9:49 am
    “Blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love him.” (James 1:12) Prairie dresses and bonnet strings flapped in the breeze as three girls ran barefoot down the trail behind our home. Our daughter brought the 1800’s pioneer life alive with a home fashioned from a tent, an outdoor church complete with a handmade cross, and of course, our dog Max, transformed into a pony. Seeing the girls embrace a bygone era brought on my own form of nostalgia. Memories of healthier…
  • Ouchies

    WendyUsuallyWanders
    19 Nov 2009 | 8:24 pm
    My days and nights are all mixed up. I went to bed about 6 this morning and woke up at noon because someone was at my door. Then soon after, my health aide came to help. Not long after she left, the mechanic drove my van here and I drove him back to his shop. Next…to the food shelf. Two guys from my church were there and they followed me home and brought my food in for me! Mary Lou found me outside, then Beth and Luc came to visit. It was dark out by the time I got to sit down at the computer and try to catch up with things. This is a new one….not only are my knees swollen, but…
  • If Wishes Were Hotdogs

    glaumland
    19 Nov 2009 | 3:50 pm
    Wow, it’s been forever since I blogged. It hasn’t been because I don’t have anything to say, it’s just been because…well, life has been wacky lately. I’m finally off the meds that turned me into an anti-social zombie. So now I’m spending lots of time trying to get my life back in some sort of order. It’s been challenging, but it’s much better than the alternative. I feel like a real person again. I was feeling sorry for the dogs, since the time change has meant that we don’t spend as much time outside with them. So Santa came early…
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    Fibromyalgia Haven
  • Things I Love #9: Gluten Free Peanut Butter Cookies

    fibrohaven
    5 Nov 2009 | 11:14 am
    I am an adventurous cook. I experiment with ingredients and flavors, seldom making the same dish twice. My husband always encourages me to write my recipes down, but I much prefer to “wing it” and see what tasty concoction I can create next. All the things that make me a spirited chef, make me a horrible baker. I simply have no tolerance for carefully measured preciseness. I learned long ago that baking is not my forte, and I avoid it accordingly. That being said, I recently discovered the easiest and most delicious Gluten Free Peanut Butter Cookie recipe that even this girl can…
  • Relaxation Technique for Pain Control

    fibrohaven
    4 Nov 2009 | 12:32 pm
    Week two of the Pain Coping Skills research study. Following up on the Progressive Relaxation guided technique of week one, in week two we learned a simple and useful technique called Mini-Practices. Mini-Practices For relaxation to benefit you the most, you need to learn how to relax and calm yourself upon your command. This skill can be very helpful when you are feeling increased tension or pain, but are unable to go to a secluded area to do progressive relaxation. To Do a Mini-Practice: Stop yourself in whatever you are doing Take a deep breath Say the word “relax” to yourself…
  • Cognitive Coping Skills for the Treatment of Fibromyalgia

    fibrohaven
    26 Oct 2009 | 6:04 pm
    Did you miss me? This time of transition in my life has been trying to say the least. An emotional roller coaster would be a better way to describe it. One second I am excited by possibilities and the next second I am crushed with defeat. Sounds a lot like life doesn’t it? It just so happens that a research study I was slated to participate in months ago started up last week. It is a local study on yoga and cognitive coping skills for the treatment of Fibromyalgia. I was hoping to end up in the cognitive group since I already have a good handle on the yoga, and  since the trials of…
  • Happy First Anniversary FibroHaven

    fibrohaven
    9 Oct 2009 | 1:45 pm
    FibroHaven is One Today! One year ago today I sat down at FibroHaven for the first time and wrote this – Welcome! In my very first post I shared what I hoped and intended to accomplish with my blog: I have found the blogs I like best are the ones whose authors are aware they have an audience, yet they speak with a realness and simplicity.  They are authentic.  I image if I met the author they would be exactly as they sound on their blog. That is the approach I hope to take in my writing.  I want to be real. One year later I think my blog is exactly as real as I was hoping it would…
  • Change, Adaptation, and the Amazing Race

    fibrohaven
    7 Oct 2009 | 1:09 pm
    Change is a constant. We all know that. So if change is constant, the only variable then is in our ability to adapt. I was watching the Amazing Race Sunday night. It really is an interesting study on human nature and the ability to adapt to constant change – to the unknown. It is remarkable how certain temperaments rise to the top as they excel at adapting to unknown situations, while others battle themselves and their own teammates while flailing wildly at the unknown. The ever important clue box is a great example of what I mean. Teams are given a general direction and told…
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    FightingFatigue.org
  • Feeling Like Dr. Jekyll & Mr. Hyde With Chronic Illness

    Sandy Robinson
    20 Nov 2009 | 1:00 am
    Personality changes are common among people with chronic illness. Because of chronic pain, extreme fatigue and exhaustion and just the severity of the illnesses can take a real toll on patients mentally along with physically. I personally feel like Dr. Jekyll & Mr. Hyde and I’m sure that many people over the years have wondered who the real Sandy is because of this. I have always basically been an upbeat, happy person who smiles big and loves life and gets really excited about new adventures. But when I am having a bad day or a severe flare, I need to be left alone. I don’t…
  • CFS Patients Fight Lazy Label Article

    Sandy Robinson
    18 Nov 2009 | 2:00 am
    I found a great article yesterday on ME/CFS that is really good.  What I liked about it was the fact that the article doesn’t repeat the same information we always hear.  There is other information in there with personal stories.  Please read the article at the link below and make sure you leave a comment on the article!  Leave me a comment also to let me know what you think! Chronic Fatigue Patients Fight Lazy Label, Support Awareness Related posts:I’m Not Lazy – I’m Sick! How many times over the years have you been accused...Associated Press Article Disses…
  • My Initial Experience With Lyrica

    Sandy Robinson
    18 Nov 2009 | 1:00 am
    My family doctor has decided to give me Lyrica to try to see if it helps with my pain issues, particularly my severe chronic headaches.  I was asking to have my pain meds increased and she thought it would be safer to go a different route and she chose Lyrica instead.  She gave me enough samples to last for one week and then she wrote out a prescription for me to have filled.  She said that you have to start at 75 mg. twice a day of Lyrica for the first week.  Then increase to 150 mg. twice a day.  I have only been on it a few days but I do notice a difference in my pain.  I…
  • Are You Getting the Flu & H1N1 Vaccine?

    Sandy Robinson
    16 Nov 2009 | 2:00 am
    I am curious to know if any of you readers out there with CFS, Fibromyalgia, IC or another chronic illness has gotten the H1N1 vaccine.  I took my son to get it because of his age and the fact that H1N1 is going around the local schools but I didn’t get it myself.   I normally don’t get the seasonal flu shots either but I did get it this year just because I was already at the doctor’s office for my sinus and ear fluid issues and they said they would give me one.  I have always been afraid to get the seasonal flu shot due to the fact that it can cause flares with our CFS…
  • My Upcoming Appointment with the ENT

    Sandy Robinson
    16 Nov 2009 | 1:00 am
    After 5 weeks of having fluid in my ear, I have finally gotten an appointment through my doctor with an ENT.  I have to wait until December 3rd for my appointment, however.  What is weird is that I had about 2 or 3 days where I didn’t feel any fluid at all in my ear and then all of a sudden – wham!  I could feel my ear filling up again.  I noticed yesterday that I was getting that pain back in my neck and in my head that is really sharp and my ear was full.  I am also running a fever off and on again.  I’m not going to get anymore antibiotics before I see the ENT.  I…
 
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